My Christmas Playlist

I opened my Spotify playlist for Christmas recently and was instantly brought back to December 2020. This week marks one year since the beginning and ending of radiation for cancer. The Christmas playlist was something I listened to on my way to and from therapy in Sacramento. For the therapy portion of those days I tried to find songs that had a length of at least 5 minutes as that would be how long my treatments were. Maverick City Music always came through for me as most of their songs are at least that long. I haven't been listening to this playlist this year. I'm not sure why, maybe because I know myself well enough that being transported to that time isn't something I like. It wasn't painful; it was just that it was CANCER. It's like grief. It's constantly in the foreground. Always lurking. I'm grateful that I feel good and that my checkups to this point have been fine. It's just that I never know. So while picking up coffee, I remembered my playlist, and the memories of last year came rushing back.

The Painter of Life Gloria Ann Kincade

I had an appointment in the city today, and after a stop in Oakland to have coffee with Alex, I drove home through the hills of Berkley. This time of year is always so beautiful; even here in California, the leaves are changing. The fresh rain helped to brighten the leaves with a soaking these last few days.

While preparing for surgery, my mother-in-law, Gloria, took her last breath from her earthly home on Sunday. I had the entire drive home from the city to process what that felt like to me. I stopped along the way and took a few photos of the landscape and that made the trip home weepy and filled with memories. The reality is that none of us will escape death. It's a hard truth but a truth just the same. What we can reflect on is the impact that we make and the lives we touch.

Gloria was the keeper of memories in the Kincade family. She spent many days putting memories in scrapbooks and reminiscing of her childhood. She was active in the lives of her children and grandchildren. I was fortunate to be the first in the family to fill her arms with a grandchild, Evan. She was an active grandparent, and although she worked full time when Evan was born, she made time for him and never missed a holiday that she could celebrate her firstborn grandchild. Not too soon after that, her second grandchild, Alex, came along, and again she and Pop-Pop made every family holiday and some made-up holidays extra special. My boys have the fondest memories of those days.

Today has been hard for many reasons that don't honestly make sense to the average person. Gloria and I had so much that we loved and enjoyed. She was an artist and loved to paint. She and I could talk for days about color, landscapes, and all of the beauty and wonder of creation. We often spoke of Jesus, and we would even complain about some of the same things. One of my fondest memories recently was the year that my father-in-law passed away and the last Thanksgiving we had with Evan. Nana (Gloria) wanted to cook Thanksgiving dinner at her house for the family, but it was a tremendous undertaking for her. So she and I partnered together, and we made Thanksgiving dinner for the family. That was our last big dinner in her home as it became too hard for her to perform that task. She LOVED to prepare and decorate for the holidays, and that is just another of the things I loved about her; her sense of style.

The Summer before Evan passed away, she and I were docents at the California State Fair. I had several photos chosen for the photography section, and it was one of the best times I can remember of us having done something we both loved. I'm grateful for Nana's influence on my life and the lives of my children. I know that Pop-pop and Evan greeted you with the biggest hug.

Grief, Coffee, and the missing of Community

The last month I’ve been busy writing stories for work. It is by far one of the things I enjoy most about the work that I do. Yesterday while working on content for my stories I came across some old photos from many years ago. Old photos have a way of bringing to the forefront those things that have been hovering just below the surface, and today, those feelings came rushing back. It’s hard to express with any understanding of how the pandemic has brought with it the pain of loss and grief but multiplied to the 10th power. I was sharing with a friend recently that one of the difficult things about grief is that nothing is ever the same. Now, of course, that can be said about many things really, and that’s not to diminish how others feel. But I can say that one of the things that I needed was routine after Evan died. I needed to have something that got me up every morning as sometimes sleep was fitful, and my heartbroken.

One of my routines is getting up and going to Peet’s every morning for coffee and to see the carousel. Sometimes I can catch a sunrise or chase the moon as it sets. But Peet’s is the place I could go and oftentimes think about Evan. When I went in for my coffee in the afternoons, he’d sometimes sneak up behind me and say, Hey Mom!. It’s a place I could always find Evan or Alex back in the day, and it is, without a doubt, a memory keeper. It has always been a place that lets me know I am home. For me, it is essential not only for coffee but for my emotional and mental health. In the first few weeks of SIP, I remember going in and being teary as I thought about how they stayed open and how for me, it was a lifeline. Peet’s never closed. When sleep was fleeting, and I was up at 5 am, I’d go and wait for them to open. The first few months of this shutdown were hard for so many reasons, but the fact that something stayed the same was comforting. I know it sounds silly as we are in the middle of a global crisis, but as many are learning, much about this SIP has to do with grief and loss. The pandemic made grief that much more intense, and it continues to feel that way.

Peet’s holds memories of past employees who have moved on to other jobs or cities. It’s a place where I’ve made friends, and it’s a place where community happened every day. It’s something I REALLY miss. I miss the community. I wonder about some of the older folks I met who came to Peet’s for connection. I miss seeing them, and in the missing, my heart longs for Evan and for days that are long gone and fading. Just to write that is heartwrenching. Grief is not always gentle. It can come at you like a freight train or like a gentle breeze, but I can tell you that it’s not made this SIP easy or manageable. Thanks, Peet’s, for providing for this grieving, heartbroken momma.

You are essential to me!

Empty Arms

Recently I started a birth and bereavement doula course, and I'm currently in the last two modules. The particular module I'm in now, we are talking about the emotional experiences of having a baby in the NICU. One of the exam questions is to choose from the list of 10 experiences one that could have a similar feeling if a child is born sleeping. So much about these emotional experiences are similar to the loss of my almost 26-year-old son. I've learned not to compare losses as when you do that; someone will always have something less or more of what you've experienced. Each loss is unique, as each person is unique. Give space for each loss and hold the heart and hand of that person so that they feel heard, understood, and valued. 

While reading through these experiences, I felt like I could identify with nearly all of them, and yet the question asked me to choose one. I decided on the word derealization, which for the parent of a NICU baby the emotional experience can be so overwhelming for them, that they find themselves in denial, forgetting, or suppressing important information that was spoken to them. Even if they appear to practice active listening, repeating things often can be helpful, along with keeping a journal of things mentioned and questions to ask. (reference from StillBirth Day)

This module, in particular, really has me thinking deeply about the painful process of birth, loss, and bereavement as it feels so very real. It had me thinking back to our days in the hospital and all the information that came our way that I heard but did not process. So much of my time in the hospital was spent with all the people: Evan's friends, Alex's friends, our friends, fielding Facebook messages so much of the processing of vital information was processed by John and Alex cause honestly, it was too much for me. The entire process of it was too much. It's hard to understand unless you’ve walked that long lonely hallway. I can never truly articulate to my husband or my son how much love I have for them. They showed me during that time, what unconditional love looks like as it was walked out during the darkest of days. It wasn't easy for them either. My husband never left Evan's room the entire time he was in the hospital. Alex always was caring for us. Both of them handled the most challenging parts of those days.

Life and death are fragile and fleeting. Whether we are talking about a baby born sleeping or a nearly 26-year-old son whose brain has stopped working but whose organs help save the lives of 5 people. Say your words — even the hard ones to those you love. Reach out to that momma who's arms are left empty because of her loss. Be a light in a world that so desperately needs it.