Mosaic of Seasons

"Winter is an etching, spring a watercolor, summer an oil painting, and autumn a mosaic of them all." Stanley Horowitz

I love this quote as it is a lovely word picture of the seasons and the different art mediums. Fall brings cooler weather, leaves changing, shorter days, and the smell of rain in the air. On the other hand, spring brings the brightest flowers, warmer weather, longer days, and the scent of new beginnings. Fall brings an end to the cycle that will begin again when spring returns. It's part of the journey, and yet we so look forward to spring, at least I do. Fall brings changes and those feelings of loss and grief for me.

This Saturday will mark the last birthday I spent with Evan here on this planet five years ago. It's one of the many birthday memories I have of us as a family, and as I begin this new year, it's a longing to be together that never leaves me. The internet isn't always kind when we see all the family's celebrating birthdays, anniversaries, and other special events, and I am ALWAYS repeating the same photos and feelings. This time of year is hard. I woke up the other day, and this overwhelming sense of grief came over and had me crying into my pillow until the sunrise. The days between tears have gotten longer. Softer. But they're still very hard. Sad. Painful. I read this article about Grief Math and had often wondered if these calculations I do on the future anniversaries and such are just a quirky thing that I do, but I've come to realize that it's a thing. That helped me feel ok about what I do.

So Saturday, I begin my next trip around the sun, and with that, I've come out on the other side one-year cancer-free. YAY! I've recovered from radiation and C*vid, and I've learned who can be trusted and who will see me through when the going gets tough. That has been the most painful and most challenging lesson for me. Just as in the earlier parts of grief, you come to realize who can be in it for the long haul, and you find that most of the time, when you go to lean back, the community has left you, and just a few are left to hold your heart. You also learn that the people who dare to stand with you are the people that have similar wounds that you do. Those people understand, and if your space is filled with a few of these precious souls, you are luckier than most.

So I walk into this birthday, feeling slightly anxious about what the future holds but more resolute to follow my path and with the feelings of grief and loss still right on the surface, ready to wake me in the early morning hours to have me watch for the sunrise.

John and Alex, thanks for always talking me off the edge. You both always find a way to carry my heart even though you, too, are walking out your grief.

Empty Arms

Recently I started a birth and bereavement doula course, and I'm currently in the last two modules. The particular module I'm in now, we are talking about the emotional experiences of having a baby in the NICU. One of the exam questions is to choose from the list of 10 experiences one that could have a similar feeling if a child is born sleeping. So much about these emotional experiences are similar to the loss of my almost 26-year-old son. I've learned not to compare losses as when you do that; someone will always have something less or more of what you've experienced. Each loss is unique, as each person is unique. Give space for each loss and hold the heart and hand of that person so that they feel heard, understood, and valued. 

While reading through these experiences, I felt like I could identify with nearly all of them, and yet the question asked me to choose one. I decided on the word derealization, which for the parent of a NICU baby the emotional experience can be so overwhelming for them, that they find themselves in denial, forgetting, or suppressing important information that was spoken to them. Even if they appear to practice active listening, repeating things often can be helpful, along with keeping a journal of things mentioned and questions to ask. (reference from StillBirth Day)

This module, in particular, really has me thinking deeply about the painful process of birth, loss, and bereavement as it feels so very real. It had me thinking back to our days in the hospital and all the information that came our way that I heard but did not process. So much of my time in the hospital was spent with all the people: Evan's friends, Alex's friends, our friends, fielding Facebook messages so much of the processing of vital information was processed by John and Alex cause honestly, it was too much for me. The entire process of it was too much. It's hard to understand unless you’ve walked that long lonely hallway. I can never truly articulate to my husband or my son how much love I have for them. They showed me during that time, what unconditional love looks like as it was walked out during the darkest of days. It wasn't easy for them either. My husband never left Evan's room the entire time he was in the hospital. Alex always was caring for us. Both of them handled the most challenging parts of those days.

Life and death are fragile and fleeting. Whether we are talking about a baby born sleeping or a nearly 26-year-old son whose brain has stopped working but whose organs help save the lives of 5 people. Say your words — even the hard ones to those you love. Reach out to that momma who's arms are left empty because of her loss. Be a light in a world that so desperately needs it.