Recently I started a birth and bereavement doula course, and I'm currently in the last two modules. The particular module I'm in now, we are talking about the emotional experiences of having a baby in the NICU. One of the exam questions is to choose from the list of 10 experiences one that could have a similar feeling if a child is born sleeping. So much about these emotional experiences are similar to the loss of my almost 26-year-old son. I've learned not to compare losses as when you do that; someone will always have something less or more of what you've experienced. Each loss is unique, as each person is unique. Give space for each loss and hold the heart and hand of that person so that they feel heard, understood, and valued.
While reading through these experiences, I felt like I could identify with nearly all of them, and yet the question asked me to choose one. I decided on the word derealization, which for the parent of a NICU baby the emotional experience can be so overwhelming for them, that they find themselves in denial, forgetting, or suppressing important information that was spoken to them. Even if they appear to practice active listening, repeating things often can be helpful, along with keeping a journal of things mentioned and questions to ask. (reference from StillBirth Day)
This module, in particular, really has me thinking deeply about the painful process of birth, loss, and bereavement as it feels so very real. It had me thinking back to our days in the hospital and all the information that came our way that I heard but did not process. So much of my time in the hospital was spent with all the people: Evan's friends, Alex's friends, our friends, fielding Facebook messages so much of the processing of vital information was processed by John and Alex cause honestly, it was too much for me. The entire process of it was too much. It's hard to understand unless you’ve walked that long lonely hallway. I can never truly articulate to my husband or my son how much love I have for them. They showed me during that time, what unconditional love looks like as it was walked out during the darkest of days. It wasn't easy for them either. My husband never left Evan's room the entire time he was in the hospital. Alex always was caring for us. Both of them handled the most challenging parts of those days.
Life and death are fragile and fleeting. Whether we are talking about a baby born sleeping or a nearly 26-year-old son whose brain has stopped working but whose organs help save the lives of 5 people. Say your words — even the hard ones to those you love. Reach out to that momma who's arms are left empty because of her loss. Be a light in a world that so desperately needs it.
